childhood cancer is part
of me…
Last week I over
heard someone saying, that’s the lady whose son died of cancer…then, they both
kindly walked over and we talked…
Childhood cancer
will always be part of who I am…
I’ve been blue lately.
And I know it’s
because of the company I have been keeping!
That company comes
with a burden.
But it’s worth it
because children are worth it!
Here’s the skinny
on some of my company:
·
Tuesday,
a young boy died from medulloblastoma, same disease as our Carson. Sure bet Carson is showing him the ropes of
heaven…
·
Last
week a young boy was transferred to hospice care, his young life cut short and death
is imminent…
·
Two weeks
ago a young boy’s leg was amputated because of a large, invasive, disgusting tumor. He faces a lifetime of trials.
In the mist of
feeling the burden of these children’s journeys, I received a letter from
Congressman McCaul’s office confirming that the childhood cancer research work
that I have had the privilege of being part of in Washington, D.C. is coming to
fruition and making GREAT progress!
This helps my
“blueness” because fighting the thief who stole my boy is very healing to me!
Here’s a bit of
the letter from Congressman McCaul's office:
“I am
extremely grateful to Annette Leslie for her tremendous passion and hard work
on behalf of children with cancer. For the past two years she has played
an instrumental role in building support for the Creating Hope Act, which was
unanimously approved in the House Committee on Energy and Commerce, and will
provide incentives for the development of new drugs to treat children with rare
diseases, such as pediatric cancer. Since the 1980s, only one new
childhood cancer drug has been approved by the FDA to treat pediatric cancer, which
is the leading disease killer of our nation’s children. Annette’s advocacy has
been essential in the fight for new treatments. Annette has been an
extraordinary advocate and leader! The Creating Hope Act passed yesterday
evening in the House!”
children are
worth fighting for…
It’s a HONOR to carry
part of their burden and to fight their fight…
congressman mccaul, linda mccaul & yep...little 'ole me!
has gotten a facelift
please check it out!!
+
It’s
official…SAVE THE DATE!!!
JANUARY 18,
2013
Carson
Leslie Foundation’s 3rd Annual
“A SUNNY
PLACE FOR SHADY PEOPLE”
TEXAS HOLD
‘EM & CHICKEN DROP…what!
You don’t
want to miss it & you don’t want to be late!!
